Who We Are?
Caring for Carter is dedicated to advocating and raising funds for research and a cure for Carter and all kiddos with CTNNB1.

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Caring for Carter is dedicated to advocating and raising funds for research and a cure for Carter and all kiddos with CTNNB1.


CTNNB1 Syndrome is a rare genetic disorder with roughly only 500 diagnosed world-wide 🌎

Carter was missing milestones early on at just 3 months. Shortly after his pediatrician referred him for genetic testing, and at 10 months he was diagnosed with CTNNB1 Syndrome. Since then Carter sees multiple specialist and attends weekly speech, occupational, and physical therapies. Now at 4 years old, Carter still has problems sitting on his own, standing, and walking. Carter's limited mobility requires use of a wheelchair, gait trainer, and an AAC Device for communication. He also has AfO's and glasses to help him with his every day task.
We host a variety of events and activities during the year:
Golf Tournament ⛳️
Purchase Merch 👕
Sponsor-A-Day 📆
Donations 💲









Your support and contributions will enable us to meet our goals and fund our mission. 💛💙🧬
For more information on CTNNB1 Syndrome and the U.S. non-profit CTNNB1 Connect & Cure, visit www.curectnnb1.org
For more information, especially gene therapy visit the international foundation at https://ctnnb1-foundation.org/
Gene therapy is a potential cure that is in the human trial stage.
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